“Patient empowerment is a living, breathing, evolving thing. It looks different for each of us, and it can change with time and by disease and severity. Patients are invariably the hub of our own healthcare, and our buy-in and partnership is essential to make the wheels spin.” Wise words. Not from a big IT company, health IT policymaker or health system executive, but from patient, Emily Kramer-Golinkoff, who was diagnosed with an aggressive form of Cystic Fibrosis at the age of 29.Emily’s words, spoken onstage at the ONC’s 2014 Consumer IT Summit, hit an all-too-familiar cord of frustration that keeps so many of us up at night – striking the balance between consistency and complexity, humanity and technology. While […]